Hello everyone.
Hello everyone.
(1) I got engaged,
(2) My son was given a clean bill of health after we discovered the vertebrae in his neck where starting to fuse. He's going to be ok but no contact sports for him (I can live with that) I just hope to never have to hold my little guy down while they sedate him for an MIR ever again. I have never felt more like a bad/evil human in my life
Aidan is doing well. Since the forum crashed we went on his make a wish trip to Give Kids The World which included Disney and Universal tickets. We had a great time and Universal really stood out from a customer service standpoint. They made him feel like a complete VIP. We got back from that trip and did his 2nd set of post treatment scans which were clean. He was supposed to have bloodwork done as well, but they were having trouble drawing it and he was on the verge of a panic attack (he's really needle phobic) so they gave him a pass on that until next time.
He's been back in school since the day they started back (which was the day after his port removal surgery) and doing great (straight A's)
He's due for more scans and blood work in March / April. Jamie and I try to put the fear of recurrence out of our minds and enjoy life, but occasionally it creeps back in and of course it gets worse the closer we get to scans.
1) CONGRATS
2) Man I feel you on that. I've had to hold Aidan down to get IVs / blood drawn too many times to count. He's completely terrified of needles and it always feels like a monumental betrayal. But I actually feel a little better being involved than letting and just watching strangers hold him down, so I always help. I'm glad everything is OK with your boy though!
Thanks for the invite. It's nice to feel like there's a home online again. :-)